Emily Klair has been on so many different medicines since being diagnosed with seizures, you would think that changing it one more time would be not a big deal to us. We went to her peds. nuero. a couple weeks ago and he wanted to change up some of her medicine to see if we can get her a little better controlled, and because she is starting kindergarten in the fall, he seems to think she needs one that is also a mood stabilizer. She also has sensory integration dysfunction.
I like the medicine she is on now and think that it has done the best to control her, but he is the Dr. and that is what we pay him the big bucks for,right? So I agreed to try this new medicine...well we have been on it for two weeks and counting along with her old medicine still, and we have had two seizures this week...so I'm thinking "why am I messing with her medicine?" One of those seizures happened while we were swimming in a friends pool and luckily I was in the water with her. I have always worried about her having seizures when I am not with her but this latest one opened my mind to a world of thoughts and fears I had yet to think about, but as she is getting older there are new fears and concerns.
We have to go next week and get some blood work done to make sure that it is OK for her to take this new medicine...scary thought that I am giving her something that could be poisoning her! She is doing great with it and even reminds me that we have to take both...the kid is amazing at taking medicine (but then again she has been taking something everyday since she was just months old) This is one of the times in my life that I wonder if I am doing the right/best thing for her?? I mean I know she needs medicine to control the seizures but sometimes I feel like we are overdoing! (but then again she is still having the seizures so I guess we are not overdoing, right?)